About and FAQ


How does it work for researchers?

You can request an account by emailing research@rareconnect.org. This will allow you to create and manage studies through this portal, enter surveys, and invite participants to your studies.

How does it work for participants?

You will receive an invitation link from the researcher, allowing you to join the study. If you join the study, a Research page will appear on RareConnect.org for your account. Here, you can see which studies you have joined, review study consents, and answer surveys the researchers have added to their studies.


Coming soon...